If you aren't already signed up for the Carcinoid List message board thingy over at ACOR, do it now. Like RIGHT NOW. It can be a lifesaving, game changing thing. The folks on there are carcinoid patients, with issues like yours....yes, people just like you! They can tell you all about their experiences with surgery, PRRT, exams and labs......all the things you are going through. Plus, Dr. Woltering is on there and will answer questions for you.....usually with a yes or no or the shortest answer possible, but still.....an answer from the top doc in the field is always good.
Here is the link:
http://www.acor.org/
Just type "carcinoid" in the search box, hit the "search" button and then click on the link for carcinoid cancer and neuroendocrine tumors.
Then enter your name and email address.
There are a few more steps but I think you will figure it out! I didn't want to create a second account just for the screen shots.
What are you waiting for?? Go do it now! And hit me up on here or via email if you have any questions.
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