I’ve been a really bad member of the carcinoid community.
It’s not that I’m in denial about my condition; it’s just that when my tumors
act all stable, I figure I might as well not talk about them. I imagine there
will be a day in my future when carcinoid rules the roost again, and I’ll give
him all the attention he needs, but for now I’ve relegated my disease to the
back burner.
A month ago I went to a carcinoid conference for the first
time since 2011, and I realized just how much I have been neglecting my
disease. Someone asked where my primary was, and although I know where it was,
the terminology to explain it had escaped me. “Ileum, I think?” was my
response. That’s pretty bad. I used to be able to rattle off my entire
diagnosis and treatment in a single (long) breath.
Being around other carcinoid patients is a great thing for me. I realize I need to get out into our growing community more. I will be attending the New Jersey Carcinoid Cancer Network conference this weekend. Looking forward to seeing some other zebras and seeing what they've been up to.
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